Is homeschooling possible when you AND your children are dealing with a chronic disease?
Is homeschooling possible when you AND your children have a chronic disease?
My husband and I were told that our children and I had a disease called mitochondrial disease. This is a chronic, progressive, and life shortening disease with no treatment or cure. There is nothing I can say that can truly explain how horribly bare, raw, scared, and lost that left us feeling. The only reason we didn’t completely collapse was we were able to pray for strength in the parking garage of the children’s hospital immediately after being told. Strength that was beyond us, God’s strength!
Philippians 4:13 I can do everything through him who gives me strength.
A year before that horrible day my husband and I were approached by older members of our church to mentor us. We were new Christians and needed guidance. Our mentors pushed us. They expected daily reading of the Bible, memorization, and accountability/bible study as a regular part of our life. I will be forever thankful for that mentoring and firmness of teaching.
Here my husband and I sat in a minivan with 3 children and 1 on the way. Just having been told that the reason all 4 of my siblings died as stillbirths or early infancy was the same thing that had taken our precious Sarah, a stillbirth. Worse, the odds of a child being diagnosed before the age of 3 meant they were not likely to live through their teen years. We were able to fall back on our faith and Lord to survive that terrible moment.
What is mitochondrial disease? What is this monster that lurks in our family tree? Mitochondria are the batteries of most cells in the body. The mitochondrial create 90% of the energy you use to think, eat, digest, walk, for your heart to beat, and breathing. We only have about 9-29% of that ability to create energy. The major energy organs in the body begin to fail because cells die from lack of energy. The brain, heart, muscles, digestive system, and liver are usually the first to show distress.
Try running all the lights, heating/cooling, and appliances in your kitchen on 2 9-volt batteries. Some items won’t run at all. My digestive system is shut down completely. I get medications through a tube in my stomach. I get other medications and food through a port in my chest that goes directly to my heart. Myself and 3 of my children have had at least 1 stroke. The medical trials go on and on. There is nowhere for us to hide. Yet we choose not to focus on this storm in our lives.
My husband and I have used this time of trial to reach out to other families in intense and extreme situations. The Lord has used these storms to strengthen our foundations as a marriage and family. We are blessed to be called on to assist others. The Lord has as He promised always kept us protected and cared for.
I would love if you would join me in prayers for healing. I want you to know that my husband and I trust the Lord so completely that if we further the Lord’s kingdom through our difficulties then we will continue to pray our way through each and every storm. If you could pray that we preserve through whatever the Lord has planned for our family we would greatly appreciate it.
You need to persevere so that when you have done the will of God, you will receive what he has promised.
Thank you and God bless.
You can find us at www.specialneedshomeschooling.com .